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Living at Home
  After a stroke, both the stroke survivor and the family often are apprehensive about being on their own at home. Among the common concerns are fear:
  • that a stroke might happen again
  • that the stroke survivor may be unable to accept the disabilities
  • that the survivor might be placed in a nursing home
  • that the caregiver may not be prepared to face the responsibility of caring for the stroke survivor
  • that friends and family will abandon them
Behavior

Neglect Daily Task Difficulties
The confused, cautious stroke survivor needs an ordered environment. The stroke survivor with poor judgment must be guided when making important decisions. The apathetic stroke survivor, on the other hand, should not live in a world so quiet and simple that there is little to react to. The caregiver needs to be aware of the reasons for the stroke survivor's behavior, without overlooking the fact that he or she may also be depressed.
Depression
Depression is nearly universal among people who have had a stroke. It can be overwhelming, affecting the spirit and confidence of everyone involved. A depressed person may refuse or neglect to take medications, may not be motivated to perform exercises which will improve mobility or may be irritable with others.
The stroke survivor's depression may dampen the family's enthusiasm for helping with recovery or drive away others who want to help. This deprives the stroke survivor of the social contacts which could help dispel depression, and creates a vicious cycle.

It is possible that as time goes by and a stroke survivor's deficits improve, the depression may lift by itself. Family can help by trying to stimulate interest in other people, encouraging leisure activities and providing opportunities to participate in spiritual activities. If necessary, chronic depression can be treated with individual counseling, group therapy or antidepressant drugs.

Emotional Lability
Sudden laughing or crying for no apparent reason and difficulty controlling emotional responses, known as emotional lability, affects many stroke survivors. There may be no happiness or sadness involved, and the emotional display will end as quickly as it started.
Some stroke survivors neglect the side of their world corresponding to the side of their brain which was injured by the stroke. Those with left-sided neglect do not perceive what is on their left side. For example, the stroke survivor with left-sided neglect may ignore the left side of the face when washing or not eat food on the left side of the plate. If the stroke survivor's head is moved to the left, neglected objects may become apparent. If the plate is turned around, he or she will finish eating the meal.
Memory Loss
Some changes in behavior, such as memory loss, can be so subtle the family may not notice them at first. A stroke survivor may be anxious and cautious, needing a reminder to finish a sentence or know what to do next. Some stroke survivors have difficulty with numbers and calculating. Their family will need to learn to keep things in the same place, do things in the same sequence, tell the stroke survivor in advance what is going to happen and possibly take over some responsibilities.
Communication Problems
If a stroke causes damage to the language center in the brain, there will be language difficulties. Some stroke survivors are unable to understand or speak at all. Others do not make sense when they speak. Some can no longer read or write. Many have difficulty pronouncing words. Communication problems are among the most frightening after-effects of stroke for both the survivor and the family, often requiring professional help.
Dressing & Gooming
If a stroke causes damage to the language center in the brain, there will be language difficulties. Some stroke survivors are unable to understand or speak at all. Others do not make sense when they speak. Some can no longer read or write. Many have difficulty pronouncing words. Communication problems are among the most frightening after-effects of stroke for both the survivor and the family, often requiring professional help.
Stroke survivors will find that completing simple tasks around the house, which they took for granted before the stroke are now extremely difficult or impossible. Many adaptive devices and techniques have been designed especially for stroke survivors to help them retain their independence and function safely and easily. The home usually can be modified so that narrow doorways, stairs and bathtubs do not interfere with the stroke survivor's ability to care for personal needs.

Helpful bathroom devices include grab bars, a raised toilet seat, a tub bench, a hand-held shower head, no-slip pads, a long-handled brush, a washing mitt with pockets for soap, soap-on-a-rope, an electric toothbrush and an electric razor.

There are many small electric appliances and kitchen modifications which also make it possible for the stroke survivor to participate in meal preparation.

Skin Care
Decubitus ulcers (sometimes called bed sores) can be a serious problem for stroke survivors who spend a good deal of time in bed or who use a wheelchair. The sores usually appear on the elbows, buttocks or heels.


To prevent bed sores, caregivers should make sure the stroke survivor does not sit or lie in the same position for long periods of time. Pillows should be used to support the impaired arm or leg. The feet can hang over the end of the mattress so that the heels don't rest on the sheet, or pillows can be put under the knees to prop them so that the soles of the feet rest flat on the bed. Sometimes, a piece of sheepskin placed under the elbows, buttocks or heels can be helpful. Special mattresses or cushions reduce pressure and help prevent decubitus ulcers.

 

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Copyright © 2000, North Carolina Stroke Association